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Heartbroken parents plead for lifesaving drug for Kilkenny youngster

The parents of a Kilkenny youngster in desperate need of medication to give him a chance at walking and to extend his life expectancy are pleading with the HSE to fund the drug. Isaac (6) from Kilkenny City lives with Spinal Muscular Atrophy (SMA). ...

13 Feb 2019 at 12:51

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'Door not shut' on access to Spinraza says Kilkenny Minister of State

The parents of Kilkenny youngster, Isaac Brennan were informed last week by the HSE that it was not in a position to fund Spinraza, a drug used to treat Spinal Muscular Atrophy. The HSE said that it would not sanction use of the drug because of ...

27 Feb 2019 at 12:16

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