All the updated news related to Cezy Fosca

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A Kilkenny youngster who lives with a potentially life-threatening condition has had her medication withdrawn. Cezy Fosca (11) who lives in Kilkenny City has Morquio Syndrome - which currently affects only ten patients in Ireland. Last Friday the ...

13 Feb 2018 at 22:55

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Taoiseach indicates that a decision will be made shortly in relation to medication for Kilkenny youngster

The plight of a Kilkenny youngster, who lives with a life-limiting condition and has had her medication pulled, was raised in the Dáil last week. Cezy Fosca (11) has Morquio Syndrome - a degenerative condition affecting major organ systems which ...

12 Mar 2018 at 13:16

Local News

Kilkenny deputy raises Cezy's case in Dáil

Fianna Fáil Deputy Bobby Alyward has raised the case at national level of a Kilkenny youngster who desperately needs to remain on her medication. Cezy Fosca (11) was diagnosed with Morquio Syndrome at the age of two - it is a rare genetic ...

17 Nov 2017 at 10:56

Local News

Kilkenny youngster wins her battle for medical treatment

After months of waiting finally the Fosca family were told that the drug their daughter so desperately needs is to be funded by the HSE. Cezy Fosca (12) lives in Kilkenny City and has Morquio Syndrome - a degenerative condition affecting ...

12 Apr 2018 at 01:20

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Kilkenny mother pleads for daughter to remain on medicine

Cezy Fosca is a vivacious 11-year-old who lives with a challenging medical condition and is facing losing the only treatment that is available to her. At two she was diagnosed with Morquio Syndrome - a rare genetic condition results in ...

01 Nov 2017 at 16:59

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Kilkenny youngster (11) pleads with Minister for her medication

A Kilkenny youngster who lives with a rare genetic condition has met with the Minister for Health, Simon Harris to raise awareness of her case. Fianna Fáil Deputy Bobby Alyward has previously raised her case at national level and also ...

08 Dec 2017 at 11:29

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