All the updated news related to Rare

All the news related to Rare updated in real time

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National News

Only 13% of people aware of rare disease could correctly identify condition

Only 13% of people who claim to have an awareness of the term “rare disease” could correctly identify a condition, a survey has revealed. The results of the survey reveal a disparity between awareness and understanding of rare diseases in Ireland. ...

07 Feb 2024 at 15:16

National News

Irish goat breed named as native and rare after extensive DNA profiling

A breed of goat has been recognised by the Department of Agriculture, Food and the Marine (DAFM) as native and rare following extensive DNA profiling. The Old Irish Goat breed - which arrived in Ireland during the neolithic age and adapted ...

09 Jun 2022 at 16:37

Your community

Campaign urges politicians in Kilkenny to take action on genetic services

A new campaign, Get Rare Aware, has been launched by Rare Diseases Ireland (RDI) to bring together politicians, medical experts and people living with rare diseases, including in Kilkenny, to take action on under-resourced genetic ...

26 May 2023 at 12:25

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Critically endangered 'snake neck' turtles catch a flight to make Kilkenny their new home

Four critically engangered ‘snake neck’ turtles will soon make Kilkenny their new home after flying in from London Zoo last week. The special passengers were on board the 18.45 flight from Southampton to Dublin with Flybe last ...

03 May 2017 at 13:05

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Kilkenny Book, Coin and Collectible Fair is this weekend

The first of the new year's books, coins and collectibles fairs is being held in Kilkenny this Saturday, January 14, at the Club House Hotel. The event will provide an ideal opportunity not only for Kilkenny bibliophiles, ...

10 Jan 2017 at 12:21

Home

Brave Kilkenny toddler gets help from Limerick village where his father grew up

A brave, young Kilkenny boy with a rare health condition has benefited from the generosity of his father's home place. Five-year-old Michael Butler lives in Kilkenny with his parents, Lorraine (Devane) and Ned who is ...

09 Jul 2018 at 08:59

National News

Expansion of newborn screening scheme ‘frustratingly slow’, official says

The Health Minister was unable to provide a date for when additional rare diseases will be added to a newborn screening programme, after an advocate expressed “disappointment” with the rate of progress. Minister ...

27 Aug 2025 at 15:57

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